Patient Owned Data
How We Manage Your Data
At FamGenix, we are firm in our belief that your health data belongs to you. No data is ever shared without your consent. We ensure that your data is:
- Secure and Encrypted
Your data resides on HIPAA/GDPR compliant servers with complete data encryption, both at rest and in transit. Data is stored on servers nearest to the region you are located.
- Not shared or sold without consent
Some companies profit from selling your data without you knowing about it. We are NOT one of those companies. There is value in the medical community for de-identified family data to help with research toward a variety of hereditary diseases. In the future, you will be notified if or when opportunities arise for sharing your data, and you can choose to participate or not. There is no one size fits all toward data sharing. Whether you want to keep your data private, share with only a clinician, or make it widely available for research, we have you covered.
Opt-in Healthcare Providers
If your healthcare provider has referred you to our app, you can opt-in the provider through a unique Clinician ID. This gives them a copy of your health record, and you can stop sending them updates at any time.
If your healthcare provider chooses to send you updates, you will be notified when they update your data. This keeps your data most accurate and up-to-date.